Searchable abstracts of presentations at key conferences on calcified tissues

ba0002p93 | (1) | ICCBH2013

Long term efficacy of low dose pamidronate treatment in osteogenesis imperfecta and its effects on growth

Goksen Damla , Ozdemir Ozgur , Ozen Samim , Darcan Sukran

Aim: To assess long term safety of low dose pamidronate therapy and the effects on pubertal growth spurt.Methods: A retrospective study was conducted in 36 girls and 21 boys whose mean age was 4.1±3.6 years at baseline. Intravenous pamidronate 3–4 mg/kg per year once daily therapy with 2–4 cycles/year for 0.5–15 years) was given with physical therapy and orthopedic surgery as appropriate. Mobility score, height, puberty and bone miner...

ba0004p15 | (1) | ICCBH2015

Fibrous dysplasia in McCune Albright syndrome; treatment and follow up

Gokeen Damla , Ozen Samim , Ozcan Nurhan , Darcan Sukran

Aim: To evaluate the effect of bisphosphonate treatment in children with McCune Albright syndrome (MAS).Materials and methods: Six MAS patients diagnosed between 1998–2012 with bone pain, bone fracture and bone deformity were evaluated retrospectively. Main outcome measures included disease presentation, diagnostic evaluation, management strategy, and outcome.Results: The mean age of the patients were 16.5±8.2 years (four...

ba0002p29 | (1) | ICCBH2013

Coping with osteogenesis imperfecta; what kind of difficulties are families living with?

Arabaci Leyla Baysan , Bozkurt Sati , Vara Senay , Ozen Samim , Goksen Damla , Darcan Sukran

Aim: Osteogenesis imperfecta (OI) the most common genetic disorder of bone is characterized by frequent, unpredictable fractures of long bones with progressive skeletal deformity. Although patients with OI are severely affected physically, this disorder may have a profound influence on patients and their families. This report reviews the extent of this influence, which includes the emotional burdens, the social costs of immobilization and repeated hospitalization.<p class=...

ba0002p30 | (1) | ICCBH2013

The effect of psychoeducation in families with osteogenezis imperfecta

Bozkurt Sati , Arabaci Leyla B Aysan , Vara Senay , Ozen Samim , Darcan Sukran , Goksen Damla

Aim: To investigate the effect of psychoeducation program in families with osteogenesis imperfecta (OI).Methods: Sixteen family members of OI patients were included in the program. The research was designed as a semi structural, semi experimental pre and post test. The scales used were; Introductory Information Form, Burden Interview (BI), Coping Strategies Scale (CSS), Problem Solving Inventory (PSI), and Psychosocial Adjustment to Illness Scale (PAIS)....